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Discrimination against people with HIV/AIDS

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Through Prejudice, Discrimination and Consent

HIV/AIDS discrimination takes many forms such as blood donation restrictions on at-risk populations, compulsory HIV testing without prior consent, violations of confidentiality within healthcare settings, and targeted violence against PLHIV. In addition, HIV discrimination is a global issue that affects individuals despite respective nation laws prohibiting HIV/AIDS discrimination. HIV/AIDS discrimination lowers the chances of PLHIV to seek help, and can affect advancement of treatments.

HIV stigma is a negative opinion or belief towards people with HIV. HIV discrimination is a negative action or behavior towards people with HIV that stem from HIV stigma. HIV/AIDS stigma is divided into the following three categories:

  • Instrumental AIDS stigma: A reflection of the fear and apprehension that are likely to be associated with any deadly and transmissible illness.
  • Symbolic AIDS stigma: The use of HIV/AIDS to express attitudes toward the social groups or lifestyles perceived to be associated with the disease.
  • Courtesy AIDS stigma: Stigmatization of people connected to the issue of HIV/AIDS or HIV-positive people.

PLHIV may also experience internalized stigma. Internalized stigma is when a person applies negative ideas or stereotypes about HIV towards themselves. This can lead to feelings of shame or isolation. Internalized stigma can increase the fear that an HIV diagnosis will be disclosed, and subsequently, increase fear of discrimination or lack of acceptance due to the HIV positive status. UNAIDS, in a study across 25 countries, reports 85% of people experience internalized stigma. HIV-related stigma and discrimination can negatively impact the mental health of people living with HIV.

Stigma towards people living with HIV is widespread. In 35 percent of countries with available data, UNAIDS reports 50 percent of people admitted to having stigma towards people living with HIV. The People Living with HIV Stigma Index (PLHIV Stigma Index) exists as a tool to collect evidence on the prevalence and impact of stigma and discrimination towards people living with HIV. The PLHIV Stigma Index was developed by GNP+, ICW, UNAIDS and IPPF in 2008, and is utilized in over 100 countries. Individual country reports of the PLHIV Stigma Index are available from 2016 and beyond.

Domestic stigmatization

Domestic stigmatization refers to HIV-related stigma that takes place within the home or familial environment. This form of stigma is distinct from institutional or healthcare stigma because it occurs in private, interpersonal contexts, often involving family members, romantic partners, neighbors, or live-in caregivers. Examples include being isolated within the home, denied access to shared household items, forcibly evicted by relatives, or subjected to verbal or physical abuse due to one’s HIV status.

A 2020 review of 37 studies across multiple countries identified 51 distinct acts of domestic stigmatization reported by PLHIV, with women disproportionately affected. These experiences were linked to microaggressions, emotional distress, and withdrawal from social or medical support systems. The study emphasizes the need for stigma-reducing interventions that target family dynamics and domestic spaces, where support is often assumed but not always present.

People living with HIV face discrimination in many sectors, including healthcare, education, employment, and law enforcement. Discrimination takes the form of denial of services, lack of accessible services for key populations, and insufficient funding and scale for services. In conjunction to internalized stigma, HIV/AIDS stigma and discrimination make it more difficult for PLHIV to feel comfortable in obtaining the medical services they need.

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