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Facilitated communication

Discredited communication technique in disabled care

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  • 8 chapters

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There is widespread agreement within the scientific community and among disability advocacy organizations that FC is a pseudoscience. Research indicates that the facilitator is the source of the messages obtained through FC, rather than the disabled person. The facilitator may believe they are not the source of the messages due to the ideomotor effect, which is the same effect that guides a Ouija board and dowsing rods. Studies have consistently found that FC is unable to provide the correct response to even simple questions when the facilitator does not know the answers to the questions (e.g., showing the patient but not the facilitator an object). In addition, in numerous cases disabled persons have been assumed by facilitators to be typing a coherent message while the patient's eyes were closed or while they were looking away from or showing no particular interest in the letter board.

James Todd called facilitated communication "the single most scientifically discredited intervention in all of developmental disabilities". Some promoters of the technique have claimed that FC cannot be clearly disproven because a testing environment might cause the subject to lose confidence. However, there is a scientific consensus that facilitated communication is not a valid communication technique, and its use is strongly discouraged by most speech and language disability professional organizations. There have been a large number of false abuse allegations made through facilitated communication.

Overview

Facilitated communication is promoted as a means to assist people with severe communication disabilities in pointing to letters on an alphabet board, keyboard, or other device so that they can communicate independently. It has also been called "supported typing", "progressive kinesthetic feedback", and "written output communication enhancement". It is related to the Rapid Prompting Method (RPM), also known as "informative pointing", which also has no evidence of efficacy.

The person with disabilities, who is often unable to rely on speech to communicate, is called the communication partner, while the person holding their arm is called the facilitator. The facilitator holds or touches the communication partner's elbow, wrist, hand, sleeve or other parts of the body while the communication partner points to letters of the alphabet on a keyboard or other device. Biklen describes FC as provision of "physical supports under the forearm, under or above the wrist, or by helping a person to isolate the index finger to facilitate the use of communication aid" and contrasts it with "typing independently, with support by a hand on a shoulder, or hand on a sleeve, leg, or elsewhere".

One device popular with early FC users was the Canon Communicator, which printed a tape of letters when activated. However, two American companies were later charged by the Federal Trade Commission for making "false and unsubstantiated claims" that the device could enable disabled people to communicate using FC. The companies settled and stopped mentioning FC in their advertising campaigns.

Proponents of FC claim that the reason people with autism cannot communicate effectively involves motor issues such as apraxia, and that they "lack confidence in their abilities" but physical support helps them overcome this limitation. However, this claim is unsubstantiated. Research indicates that many non-verbal people with autism spectrum disorder are unable to communicate due to intellectual disability.

The facilitator is depicted as helping the patient with pointing to letters, controlling involuntary arm movements, avoiding mistakes, initiating movement, verbal prompts, and moral support. It is also claimed that the facilitator must believe in the patient's ability to communicate. Former facilitator Janyce Boynton, who came to reject the technique after taking part in blind testing, later reported that her training took for granted that the process worked, and that the complexity of facilitation made it hard to realise that messages were coming from her expectations and not from her patients:

When you're facilitating, you're so distracted by other things. You're carrying on conversations, you're asking and answering questions, you're trying to look at the person to see if they're looking at the keyboard...Your brain is so engaged that you lose sight of what's happening with your hand...that's what makes it feel like it's working because the more you practice it, the more the movements feel really fluid.

Scott Lilienfeld, the Dobbs Professor of Psychology at Emory University, writing in The Neuroethics Blog, admonishes practitioners of mental health practice not to ignore their "epistemic duties – responsibilities to seek out and possess accurate knowledge about the world", and wrote:

Ultimately, the proponents of facilitated communication very much wanted to help individuals with autism. But the facilitated communication tragedy teaches us that good intentions are not sufficient. Good intentions paired with grossly inaccurate knowledge and an absence of a self-critical mindset can be disastrous. This tragedy also teaches us that by not attending to their epistemic duties, professionals can do grave harm without intending to do so.

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